SESSION I: CURRENT LANDSCAPE

3/29/2016
Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK
Rose James, Cedar Rose Consulting
David Lacks Jr., Lacks Family

Join the Conversation! Tweet your thoughts using #BuildingTrust.
Follow @PCORnetwork for live updates from the event.
For technical questions or problems with the live broadcast, email us here.

Post Comment 200
Screenshot 0
Concluding Remarks
starstarstarstarstar
3,440 views | 8 years ago
Screenshot 0
RECAP of DAY 1 and Opportunities for Day 2
Sharon Terry, Chair, PCORnet Engagement Committee 3,435 views | 8 years ago
Screenshot 0
Welcoming Remarks
Joe Selby, PCORI Executive Director
Rachael Fleurence, PCORnet Director, PCORI
13,720 views | 8 years ago
Screenshot 0
Keynote: What constitutes trustworthiness?
starstarstarstarstar
Ruha Benjamin, Princeton University 3,895 views | 8 years ago
Screenshot 0
SESSION I: CURRENT LANDSCAPE
Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK 3,576 views | 8 years ago
Screenshot 0
SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS
starstarstarstarstar
Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Te...
3,648 views | 8 years ago
Screenshot 0
SESSION III: Special Issues for Special Populations
starstarstarstarstar
Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead...
3,674 views | 8 years ago
Screenshot 0
SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, A...
3,525 views | 8 years ago
Screenshot 1
SESSION VI: Building Trust
starstarstarstarstar
Moderator: Bray Patrick Lake, PCORnet Coordinating Center
Panelists:
Bowen Chung, Co-PI, CPPRN
Felica Jones, Patient Stakeholder, CPPRN...
4,435 views | 8 years ago
Screenshot 0
SESSION VII:Trust in Other Contexts
Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Luisa Soaterna-Castañeda, Text4baby
Joy Hathaway, Director of Community Outreach, KaBOOM!...
3,413 views | 8 years ago
Screenshot 0
SESSION VIII: TRUSTWORTHINESS WITHIN PCORNET
Moderator: Andrew Nierenberg, Principal Investigator, MOOD Network
Holly Peay, Principal Investigator, DuchenneConnect
Mitchell R. Lunn,Prin...
3,938 views | 8 years ago
Screenshot 0
SESSION IX: RECOMMENDATIONS for PCORnet
starstarstarstarstar
Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Ra...
3,953 views | 8 years ago