SESSION III: Special Issues for Special Populations

3/29/2016
Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead, The PRIDE Study
Jennie David, ImproveCareNow PPRN
Meryl Comer, Co-Principal Investigator, AD-PCPRN
Deborah C. Peel, Founder, Patient Privacy Rights

Join the Conversation! Tweet your thoughts using #BuildingTrust.
Follow @PCORnetwork for live updates from the event.
For technical questions or problems with the live broadcast, email us here.

Post Comment 200
Screenshot 0
Concluding Remarks
 starstarstarstarstar 3,654 views | 8 years ago Screenshot 0
RECAP of DAY 1 and Opportunities for Day 2
 Sharon Terry, Chair, PCORnet Engagement Committee 3,663 views | 8 years ago Screenshot 0
Welcoming Remarks
 Joe Selby, PCORI Executive Director
Rachael Fleurence, PCORnet Director, PCORI 14,367 views | 8 years ago Screenshot 0
Keynote: What constitutes trustworthiness?
 starstarstarstarstar Ruha Benjamin, Princeton University 4,126 views | 8 years ago Screenshot 0
SESSION I: CURRENT LANDSCAPE
 Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK 3,790 views | 8 years ago Screenshot 0
SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS
 starstarstarstarstar Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Te... 3,859 views | 8 years ago Screenshot 0
SESSION III: Special Issues for Special Populations
 starstarstarstarstar Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead... 3,918 views | 8 years ago Screenshot 0
SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK
 Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, A... 3,751 views | 8 years ago Screenshot 1
SESSION VI: Building Trust
 starstarstarstarstar Moderator: Bray Patrick Lake, PCORnet Coordinating Center
Panelists:
Bowen Chung, Co-PI, CPPRN
Felica Jones, Patient Stakeholder, CPPRN... 4,655 views | 8 years ago Screenshot 0
SESSION VII:Trust in Other Contexts
 Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Luisa Soaterna-Castañeda, Text4baby
Joy Hathaway, Director of Community Outreach, KaBOOM!... 3,635 views | 8 years ago Screenshot 0
SESSION VIII: TRUSTWORTHINESS WITHIN PCORNET
 Moderator: Andrew Nierenberg, Principal Investigator, MOOD Network
Holly Peay, Principal Investigator, DuchenneConnect
Mitchell R. Lunn,Prin... 4,162 views | 8 years ago Screenshot 0
SESSION IX: RECOMMENDATIONS for PCORnet
 starstarstarstarstar Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Ra... 4,201 views | 8 years ago