SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK

3/29/2016
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, Assistant Professor, Family Medicine and Public Health School of Medicine, University of California, San Diego
Claudia Williams, Senior Health and Health IT Advisor, White House Office of Science and Technology Policy
Eleanor Celeste, Policy Analyst, Medical and Forensic Science, White House Office of Science and Technology Policy
Alan Richmond, Executive Director, Community-Campus Partnerships for Health

Join the Conversation! Tweet your thoughts using #BuildingTrust.
Follow @PCORnetwork for live updates from the event.
For technical questions or problems with the live broadcast, email us here.

Post Comment 200
Screenshot 0
Concluding Remarks
starstarstarstarstar
3,449 views | 8 years ago
Screenshot 0
RECAP of DAY 1 and Opportunities for Day 2
Sharon Terry, Chair, PCORnet Engagement Committee 3,441 views | 8 years ago
Screenshot 0
Welcoming Remarks
Joe Selby, PCORI Executive Director
Rachael Fleurence, PCORnet Director, PCORI
13,745 views | 8 years ago
Screenshot 0
Keynote: What constitutes trustworthiness?
starstarstarstarstar
Ruha Benjamin, Princeton University 3,903 views | 8 years ago
Screenshot 0
SESSION I: CURRENT LANDSCAPE
Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK 3,583 views | 8 years ago
Screenshot 0
SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS
starstarstarstarstar
Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Te...
3,655 views | 8 years ago
Screenshot 0
SESSION III: Special Issues for Special Populations
starstarstarstarstar
Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead...
3,683 views | 8 years ago
Screenshot 0
SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, A...
3,532 views | 8 years ago
Screenshot 1
SESSION VI: Building Trust
starstarstarstarstar
Moderator: Bray Patrick Lake, PCORnet Coordinating Center
Panelists:
Bowen Chung, Co-PI, CPPRN
Felica Jones, Patient Stakeholder, CPPRN...
4,442 views | 8 years ago
Screenshot 0
SESSION VII:Trust in Other Contexts
Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Luisa Soaterna-Castañeda, Text4baby
Joy Hathaway, Director of Community Outreach, KaBOOM!...
3,418 views | 8 years ago
Screenshot 0
SESSION VIII: TRUSTWORTHINESS WITHIN PCORNET
Moderator: Andrew Nierenberg, Principal Investigator, MOOD Network
Holly Peay, Principal Investigator, DuchenneConnect
Mitchell R. Lunn,Prin...
3,945 views | 8 years ago
Screenshot 0
SESSION IX: RECOMMENDATIONS for PCORnet
starstarstarstarstar
Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Ra...
3,962 views | 8 years ago