SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK

3/29/2016
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, Assistant Professor, Family Medicine and Public Health School of Medicine, University of California, San Diego
Claudia Williams, Senior Health and Health IT Advisor, White House Office of Science and Technology Policy
Eleanor Celeste, Policy Analyst, Medical and Forensic Science, White House Office of Science and Technology Policy
Alan Richmond, Executive Director, Community-Campus Partnerships for Health

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Concluding Remarks
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918 views | 1 years ago
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RECAP of DAY 1 and Opportunities for Day 2
Sharon Terry, Chair, PCORnet Engagement Committee 858 views | 1 years ago
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Welcoming Remarks
Joe Selby, PCORI Executive Director
Rachael Fleurence, PCORnet Director, PCORI
4,933 views | 1 years ago
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Keynote: What constitutes trustworthiness?
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Ruha Benjamin, Princeton University 1,197 views | 1 years ago
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SESSION I: CURRENT LANDSCAPE
Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK 969 views | 1 years ago
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SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS
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Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Te...
959 views | 1 years ago
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SESSION III: Special Issues for Special Populations
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Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead...
1,018 views | 1 years ago
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SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, A...
969 views | 1 years ago
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SESSION VI: Building Trust
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Moderator: Bray Patrick Lake, PCORnet Coordinating Center
Panelists:
Bowen Chung, Co-PI, CPPRN
Felica Jones, Patient Stakeholder, CPPRN...
1,092 views | 1 years ago
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SESSION VII:Trust in Other Contexts
Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Luisa Soaterna-Castañeda, Text4baby
Joy Hathaway, Director of Community Outreach, KaBOOM!...
937 views | 1 years ago
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SESSION VIII: TRUSTWORTHINESS WITHIN PCORNET
Moderator: Andrew Nierenberg, Principal Investigator, MOOD Network
Holly Peay, Principal Investigator, DuchenneConnect
Mitchell R. Lunn,Prin...
1,044 views | 1 years ago
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SESSION IX: RECOMMENDATIONS for PCORnet
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Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Ra...
1,054 views | 1 years ago