SESSION IX: RECOMMENDATIONS for PCORnet

3/29/2016
Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Rachael Fleurence, PCORnet Director, PCORI
Peter Margolis, Principal Investigator, ImproveCareNow PPRN and Chair of the PCORnet Council
Tom Carton, Principal Investigator, REACHnet CDRN
Adrian Hernandez, Co-Principal Investigator, PCORnet Coordinating Center

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Concluding Remarks
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RECAP of DAY 1 and Opportunities for Day 2
Sharon Terry, Chair, PCORnet Engagement Committee 451 views | 12 months ago
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Welcoming Remarks
Joe Selby, PCORI Executive Director
Rachael Fleurence, PCORnet Director, PCORI
2,988 views | 12 months ago
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Keynote: What constitutes trustworthiness?
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Ruha Benjamin, Princeton University 691 views | 12 months ago
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SESSION I: CURRENT LANDSCAPE
Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK 491 views | 12 months ago
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SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS
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Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Te...
487 views | 12 months ago
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SESSION III: Special Issues for Special Populations
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Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead...
544 views | 12 months ago
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SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, A...
504 views | 12 months ago
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SESSION VI: Building Trust
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Moderator: Bray Patrick Lake, PCORnet Coordinating Center
Panelists:
Bowen Chung, Co-PI, CPPRN
Felica Jones, Patient Stakeholder, CPPRN...
551 views | 12 months ago
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SESSION VII:Trust in Other Contexts
Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Luisa Soaterna-Castañeda, Text4baby
Joy Hathaway, Director of Community Outreach, KaBOOM!...
483 views | 12 months ago
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SESSION VIII: TRUSTWORTHINESS WITHIN PCORNET
Moderator: Andrew Nierenberg, Principal Investigator, MOOD Network
Holly Peay, Principal Investigator, DuchenneConnect
Mitchell R. Lunn,Prin...
479 views | 12 months ago
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SESSION IX: RECOMMENDATIONS for PCORnet
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Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Ra...
575 views | 12 months ago