SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS

3/29/2016
Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Texas
Transparency- Hugo Campos, Patient Co-PI, pSCANNER

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Concluding Remarks
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531 views | 12 months ago
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RECAP of DAY 1 and Opportunities for Day 2
Sharon Terry, Chair, PCORnet Engagement Committee 451 views | 12 months ago
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Welcoming Remarks
Joe Selby, PCORI Executive Director
Rachael Fleurence, PCORnet Director, PCORI
2,988 views | 12 months ago
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Keynote: What constitutes trustworthiness?
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Ruha Benjamin, Princeton University 691 views | 12 months ago
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SESSION I: CURRENT LANDSCAPE
Moderator: Kemp Battle, Genetic Alliance Council
Jane Kaye, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, UK 491 views | 12 months ago
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SESSION II: ESSENTIAL ELEMENTS of TRUSTWORTHINESS
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Moderator: Jocelyn Samuels, Director,HHS Office for Civil Rights
Respect–Casey Quinlan, Mighty Casey Media
Privacy–Ivette Torres, GRACIAS Te...
487 views | 12 months ago
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SESSION III: Special Issues for Special Populations
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Moderator: James O’Leary, Genetic Alliance
Neely Williams, Community Engagement Strategist,Mid-South CDRN
Annesa Flentje, Mental Health Lead...
544 views | 12 months ago
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SESSION IV: POLICY APPROACHES AND LEGAL FRAMEWORK
Moderator: Kelly Edwards,University of Washington
Jerry Menikoff, Director, HHS Office for Human Research Protections
Camille Nebeker, A...
504 views | 12 months ago
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SESSION VI: Building Trust
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Moderator: Bray Patrick Lake, PCORnet Coordinating Center
Panelists:
Bowen Chung, Co-PI, CPPRN
Felica Jones, Patient Stakeholder, CPPRN...
551 views | 12 months ago
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SESSION VII:Trust in Other Contexts
Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Luisa Soaterna-Castañeda, Text4baby
Joy Hathaway, Director of Community Outreach, KaBOOM!...
483 views | 12 months ago
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SESSION VIII: TRUSTWORTHINESS WITHIN PCORNET
Moderator: Andrew Nierenberg, Principal Investigator, MOOD Network
Holly Peay, Principal Investigator, DuchenneConnect
Mitchell R. Lunn,Prin...
479 views | 12 months ago
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SESSION IX: RECOMMENDATIONS for PCORnet
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Moderator: Sharon Terry, Principal Investigator, Community Engaged Network for All PPRN and Chair of the Engagement Committee
Respondents
Ra...
574 views | 12 months ago